Mother releases harrowing video of daughter suffering seizures in bid to access

first_img Short URL Tuesday 21 Feb 2017, 6:57 PM Share510 Tweet Email WARNING. Some viewers may find the below clip distressing. Source: TheJournal.ie/YouTubeA MOTHER HAS released harrowing images of her young daughter suffering from seizures to put pressure on health officials to speed up her access to potentially life-changing medication.Vera Twomey released a video to Tv3 News of her daughter Ava suffering from a severe seizure.Ava suffers from Dravet Syndrome, a debilitating condition which can see her suffer as many as 20 seizures every day.Dravet Syndrome is a rare form of epilepsy that is resistant to drugs. However, Vera says that a form of medicinal marijuana can help her daughter.Ava was on a medication called Charlotte’s Web – a cannabis extract – to help reduce the frequency of her seizures – which it did.Charlotte’s Web contains very little THC – which causes the psychoactive “high” associated with cannabis use.From the time Ava began taking Charlotte’s Web on 2 October until the end of that month, she only had seven seizures. This compared to several hundred over the course of other months.But as medicinal cannabis is not legal in Ireland, Ava cannot use the drug, despite it reducing her symptoms on such a dramatic scale.Vera has been campaigning for the past year to have medicinal marijuana legalised in Ireland.A bill that would regulate the use of cannabis for medical purposes was passed to committee stage by the Dáil in December of last year.As well as this, Health Minister Simon Harris announced earlier this month that he would establish a compassionate access programme for cannabis-based treatments for certain conditions.However, Vera has said that she still hasn’t heard from anyone to approve them for the treatment.Speaking to TV3 News, Vera called for the HSE to look at Ava’s case and speed up her access to the treatment.“We have to get help for her now,” Vera said.The HSE said they would look towards Ava’s application for medicinal cannabis as a priority, they’d look at it urgently. But their sense of urgency and our sense of it are not meeting up at all.Vera has met with minister Simon Harris in the past and is due to meet him again on Thursday. She pleaded with officials to speed up Ava’s access to the life-changing medication, saying that time is running out for her daughter.“When she goes into a seizure you don’t know what way she’s going to be when she comes out,” she said.Her life is on the line. It really, really is. Every time.Read: “If we don’t get the legislation, we mightn’t have Ava for much longer”: A mother’s 150-mile protestRead: ‘It’s like getting to know a new part of our daughter’: Cannabis bill passes first stage Mother releases harrowing video of daughter suffering seizures in bid to access medication Vera Twomey is calling for her daughter to be given access to potentially life-changing medication. 46 Comments http://jrnl.ie/3251456 By Cormac Fitzgerald 23,744 Views Feb 21st 2017, 6:57 PM Tweet thisShare on FacebookEmail this articlelast_img read more

I dont really care about the policies McIlroy reveals interest in Trumps

first_img Rory McIlroy: “I had no interest in politics until a couple of years ago; now I can’t seem to get away from it.” Feb 24th 2017, 3:12 PM https://the42.ie/3257112 FORMER WORLD NUMBER one Rory McIlroy has revealed his fascination with Donald Trump after taking to the fairways with the controversial US President.Trump is a keen golfer and McIlroy accepted an offer from the commander-in-chief to join him for a round at the Trump International Golf Club in Florida last weekend.Trump’s contentious comments and actions have been criticised by some in the world of sport.But while McIlroy refrained from offering his views on his latest playing partner’s political policies, the former British Open, US Open and PGA Championship winner did reveal he was intrigued by Trump’s rise to power.“I really got into it once Trump ran because I knew him a little bit but at the same time I was intrigued how a successful businessman could transition into running for the highest office in the land,” McIlroy told the Guardian on Friday.“It is a totally different process from the UK. He obviously came at it from a completely different angle. 29,708 Views Share9 Tweet Email1 Short URL Rory McIlroy: “I had no interest in politics until a couple of years ago; now I can’t seem to get away from it.” Image: David Davies By AFP 77 Comments I’ve said it to the man himself; on a Tuesday night at a tournament, if there was a live (political) debate, I would get room service, stick on CNN and just watch. It was pure entertainment, even if you didn’t understand politics it was this complete phenomenon.“Something like this probably won’t happen again in our lifetime. I’m very attuned to it, I watch a lot of news. You can’t avoid it. I had no interest in politics until a couple of years ago; now I can’t seem to get away from it.I feel like I’ve stayed unpolitical in terms of Northern Ireland and all that goes on there but because I’m not an American I don’t feel a real part of it; I’m just interested by the phenomenon of it all.“I don’t really care about the policies. The whole circus, this big show is intriguing to watch.”© – AFP 2017The42 is on Instagram! Tap the button below on your phone to follow us! Friday 24 Feb 2017, 3:12 PM ‘I don’t really care about the policies’ – McIlroy reveals interest in Trump’s rise The US president’s contentious comments and actions have been criticised by some in the world of sport. Image: David Davies Seamus Power four off the lead at the Honda Classic while Harrington and McDowell struggle>‘He knows he can’t beat anybody!’ Golfer that you’ve never heard of rips into Tiger> Follow us: the42.ie Tweet thisShare on FacebookEmail this articlelast_img read more